We're here to bridge the gap between medical professionals and the family.

Just why, you know? We've had family members that have had cancers in the last four to five years and to have this happen to our child, you can't even describe the feeling.

Some families have just one member diagnosed with Chiari. And 120 of those have two or more family members who were diagnosed.

That's how birthdays were in our house. All hateful charades of pretty clothes, expensive presents, and ugly words . . .

How do you say no to your family and close friends?

What are the things I want to do for my family, myself and my favorite charity.