I want to be remembered as a poet, a peacemaker, and a philosopher who played.

I write to express my thoughts, my feelings. I want people to think.

Maybe I wanted to have kids because you want to leave behind lessons, leave behind everything that matters to you. That's how you touch the world. But I have to reconsider what it's like to leave a legacy.

I think that someone is watching out for me, God, my guardian angel, I'm not sure who that is, but they really work hard.

I never question God. Sometimes I say, 'Why me? Why do I have such a hard life? Why do I have this disease? Why do I have siblings who died?' But then I think and say, 'Why not me?'

My disease is a very rare form of muscular dystrophy, called disautonomic mitochondrial myopathy.